Friday, August 19 at 05:49 AM:
allen from boston,ma wrote:
"my best friend bobby V is 36yrs and has had als for 2yrs+ and it is very hard to get meds that will atleast slow the progression down,It all has to do with money as far as I am concerned, there have been clinical studies that show there are thing that can slow this beast down at least, its very frustating watching your loved ones wast away and not get the proper healt care that they need due to money,god bless you joy and all the people around you"
Sunday, August 14 at 08:12 PM:
kandi from bremerton washington wrote:
"my father passed away from als about 5 years ago"
Monday, July 25 at 10:39 AM:
Cori from Alberta wrote:
"My Mother In Law passed away from ALS a year and a half ago at 59. I'd never seen such a horrible disease ravage someone so fast and without any mercy. We desperately need to find a cure and stop others from having to endure such a thing. "
Monday, July 25 at 01:41 AM:
Julie from Vermont wrote:
"My Brother was diagnosed with ALS in April of 2009. He has a slow progression kind if ALS."
Saturday, July 23 at 05:45 PM:
Debbie from Lutz, FL wrote:
"Mom mother just 2 years ago at age 63, my grandmother at age 52 and 2 aunts who passed. It hurts, it hurts having a 4 year old son who I may never see to grow up, who we adopted a birth and may now lose another mother"
Friday, July 22 at 03:07 PM:
Jo from UK wrote:
"My friend is currently fighting als/mnd(uk equivalent). I became her friend after first becoming her carer. In my 17 years as a carer I have cared for 3 people with this awful illness. As a carer I see the effects it has on families. The daily struggles that need to be overcome. I see the devastation this illness inflicts on families. On the other hand I have never met such strong and determined people either. People who refuse to give in who live for the moment, love with all their heart and fight with every bit of spirit their bodies can muster. "
Saturday, July 16 at 10:47 AM:
Tara from Phoenix, Arizona wrote:
"My mom (age 50) was diagnosed with ALS in November 2010. It's the most heartbreaking thing I have ever experienced! "
Friday, July 15 at 11:25 PM:
Marian from Fontana, CA wrote:
"My mother passed from ALS on February 9, 2009, i have been following Joy ...my love and prayers to her family, she is in peace now...keeping Walking to Defeat ALS, my family does"
Friday, July 15 at 10:40 PM:
Mike from Airdrie, AB, Canada wrote:
"Lost my Dad to it in 2008. My wife has lost a grandmother, an uncle, an aunt to ALS and has another aunt fighting for the past 4 years."
Friday, July 15 at 10:37 PM:
Brenda from McFadden wrote:
"My aunt passed away in May this year after struggling with ALS at approximately 3 years and at only 61 years of age. I am deeply saddened by this, as is everyone in our family."
Friday, July 15 at 10:14 PM:
Matt from Calgary wrote:
"Lost my favorite Uncle Jim almost 4 years ago. "
Friday, July 15 at 09:52 PM:
Margot from Ontario wrote:
"I lost my amazing cousin, Mark, to ALS this year. A cure must be found. And we all have to work together to make that happen. "
Friday, July 15 at 09:23 PM:
Karin du mortier from holland wrote:
"I've lost my mother"
Friday, July 15 at 08:49 PM:
Jodi from Calgary wrote:
"I lost my best friend...the sister I never had, but I also lost Roy Shannon. He is a man who never stopped laughing and loved a good joke. Growing up, I was friends with his kids and we went camping and did so much together. I miss his laugh"
Friday, July 15 at 08:38 PM:
Regina from Chickamauga, Ga USA wrote:
"My sister was diagnosed in Jan 2009 and passed away Aug 2009. Her disease progressed at a very rapid pace."
Friday, July 15 at 08:34 PM:
Tami from Bakersfield, CA wrote:
"I lost my dad in 2003 from ALS. It's time for a cure."
Thursday, July 14 at 08:42 PM:
Ashley from Louisville, KY wrote:
"My dad had it for 2 years before dying in December 2009 from it. How I was affected from ALS was more than I could express through words but I know I will never be the same. "
Thursday, July 14 at 03:48 PM:
Nicole from Youngstown, ohio wrote:
"My dad passed away from ALS on November 18, 2009 after battling the disease for a little less than 2 years. I know in my heart that one day we will find a cure for this horrible sickness so no other children have to go through the pain of losing their father too young."
Thursday, July 14 at 03:33 AM:
Molly from Chicago wrote:
"My Dad was diagnosed in October 2010. Follow our battle @stepsfordoug on Twitter. "
Wednesday, July 13 at 02:55 PM:
Diane from UK wrote:
"My mum had ALS (MND in the UK). I think you become so much more aware of it once you know someone with MND."
Wednesday, July 13 at 01:34 PM:
LeeAnn from Michigan wrote:
"I was diagnosed April 29, 2010"
Wednesday, July 13 at 12:42 PM:
Erin from Ramsey, Minnesota wrote:
"My mother was diagnosed with this horrible disease in February 2009."
Wednesday, July 13 at 08:07 AM:
Melissa from Miami, Florida wrote:
"My mother was diagnosed August 2010 & I'm her full time caregiver. It's been a tough road.. She's progressed quickly. "
Tuesday, July 12 at 11:43 PM:
Jodi from Calgary AB wrote:
"CALS = my best friend is Joy. Find a cure for ALS"
