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ALS Facts:

  • ALS is not a rare disease - two or three Canadians die each day of this devastating disease
  • According to the World Health Organization, neurodegenerative diseases are predicted to surpass cancer as the second leading cause of death in Canada by 2040
  • Approximately 2,500 - 3,000 Canadians currently live with ALS
  • Most people living with ALS lose some or complete use of their hands and legs within the first 2 years of their diagnosis
  • ALS always results in death. 90% of people with ALS die within 5 years of diagnosis
  • Eighty per cent of people with ALS die within two to five years of diagnosis - unable to breathe or swallow
  • In at least 90% of cases, it strikes people with no family history of the disease
  • ALS, often called Lou Gehrig's Disease, means Amyotrophic Lateral Sclerosis
  • The average age of onset is 55 years - 80% of ALS cases begin between the ages of 40 to 70.
  • PALS diagnosed between the ages of 20 and 40 have a higher chance of surviving for 5 years
  • A person with ALS can require equipment valued at more than $40,000 -n ursing care can cost several times that amount
  • The cause is unknown. There is no known cure or treatment that prolongs life significantly - yet.
sources:  ALS Society of Alberta, ALS Society of Canada
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